This section will grow over time, but for now:
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The
Cardiac Sarcoidosis Facebook Group
is very active and has lots of people asking questions, giving answers,
and sharing experiences and advice. One of the purposes of
Cardiac Sarcoidosis Experience is to help people find this
Facebook group.
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The
UK Cardiac Sarcoidosis Facebook Group
is similar, but a bit less active.
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The
Foundation for Sarcoidosis Reserch
has resources about sarcoidosis in general
(not specific to cardiac sarcoidosis),
including information
about what sarcoidosis is and what is
known about its cause, information about
finding a doctor with experience in
sarcoidosis, support groups,
lists of clinical trials for new
sarcoidosis treatments,
and fundraising for sarcoidosis research.
-
SarcoidosisUK
is similar to the Foundation for Sarcoidosis Reserch,
but offers support groups and other resources
for the UK instead of the USA.